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Joanne Mitchell

  • Joined:January '09
  • Location:Surrey
  • Age:47
  • Last Online:31 minutes ago

About me

Hi,
I have lost 4 babies to a genetic condition called Trisomy 18 or Edwards Syndrome. After Alex was diagnosed we were both tested and found out that my husband was a carrier of the condition although he is not affected by it. I was angry because we had been told after my first two miscarriages that there was nothing wrong genetically, and after my daughter Ciara was stillborn (at full term), they could find nothing wrong with her either, so we had to lose 4 babies before anyone suggested genetic testing. A simple blood test could have saved us from 10 years of heartache!

Having said that, I do not regret one minute spent with my son, but I now say to anyone having multiple "unexplained" miscarriages/stillbirths to insist on genetic testing.

There is a support group called S.O.F.T UK who support families of children with Trisomy 18(Edwards) & Trisomy 13(Patau's).
http://www.soft.org.uk/

Thank you so much to everyone who has left messages or lit candles for my Angels. It is so comforting to know people care. xx



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thankyou for taking the time to light a candle for my dad x

3 hours ago

thank you joanne for the pictures. i am so sorry for your losses. xx nic

Yesterday afternoon

Thank you for the poem and pictures you have left for Katie love Tricia xxx

Yesterday afternoon

Hello thank you so much for the lovely poems and pics you have left on my angel Bens Memorial thay are realy nice thank you again,

love to you'r family and little angels

love jo (Ben's mummy) xxxxx

Thursday midday

I read your story and my heart goes out to you.
Much love to all our angels x

Thursday midday
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